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AMNhelp.com Adrenomyeloneuropathy (AMN)
AMN help - A Better Life.
 
Online Resources

 

Adrenomyeloneuropathy Community on RareShare
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ALD LIFE

ALD LIFE aims to help all affected by or interested in adrenoleukodystrophy and adrenomyeloneuropathy, whether personally or medically. We will try and help you to become Aware, Learn and Discuss the many implications of this devastating disorder.
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Adrenoleukodystrophy on Wikipedia

Provides an overview of the disease, symptoms, and treatment options for patients suffering from Adrenoleukodystrophy (ALD).
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AMN-Easier

AMN-Easier provides telephone advice, information and support to adult men and women who have recently been diagnosed as having Adrenoleukodystrophy (ALD) or Adrenomyeloneuropathy (AMN).

Tel: 020 7267 6573
Monday - Friday: 9.00am - 10.00pm
Saturday and Sunday: 9.00am - 5.00pm, weekends

FightALD

The mission of FightALD is to educate medical professionals and the community about the symptoms of ALD and AMN to hopefully enable people who are affected get an accurate diagnosis.
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MSN Leukoddystrophy Family Support Group

Looking for a place to discuss ALD or AMN? Visit the MSN Leukoddystrophy Family Support Group site to access message boards, documents, upcoming events, diagnosis stories, and more.
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Olivers Army

Olivers Army is a registered charity in the United Kingdom that has been formed to raise money for ALD research. In 2007 the Organization has pledged £100,000 to the Max Planck Institute in Germany.
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United Leukodystrophy Foundation, Inc.

The United Leukodystrophy Foundation (ULF), incorporated in 1982, is a nonprofit, voluntary health organization dedicated to providing patients and their families with information about their disease and assistance in identifying sources of medical care, social services, and genetic counseling; establishing a communication network among families; increasing public awareness and acting as an information source for health care providers; and promoting and supporting research into causes, treatments, and prevention of the leukodystrophies. Leukodystrophies are a group of genetic nervous system disorders affecting the myelin sheath, which insulates the axon through which nerve impulses are conducted. The ULF is supported solely by donations.
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